I recently read a book, “Schuyler’s Monster” about a father’s experiences with his daughter, Schuyler, and her disability. Robert Rummel-Hudson refers to his daughter’s disability as a “monster” throughout the book that left her unable to communicate verbally. His honesty regarding what he went through before, during, and after diagnosis offers real understanding for professionals and may allow parents to feel understood or not alone. Although some parents and professionals may not like his opinion about disabilities or religion, I found the book to be inspiring and full of hope. Schuyler’s parents never give up on helping her have her own voice through a speech generating device. “Schuyler’s Monster” is a book for all individuals who work with kids who have disabilities.
And if the book leaves you wondering what is going on now for Schuyler, you can read Robert’s blog to find out more!
For those who want to know more about autism and speech generating devices, I will be doing a webinar next Thursday afternoon, June 7, 2012, 3:30-4:30 EST. I will be sharing my research where I interviewed families about the use of speech generating devices with their son or daughter who has autism. My presentation will be not only informative, but also entertaining as I share family experiences. Registration is $39 through ATIA. The following is a link to register: http://www.atia.org/i4a/pages/index.cfm?pageID=4177
A friend recently brought a success story to my attention about the use of technology with a child who was considered to have severe autism who is now able to express herself by typing. Carly had no way to communicate until the age of 10 when she began by typing three simple words: help teeth hurt. She has written a book about her experiences that came out on March 27, 2012.