Daddy Writes about His Daughter’s Disability

Another book repost…not about autism, but an in-depth look at a family whose daughter uses a Speech Generating Device to speak. Schuyler is now a teenager and I still love to read her dad’s blog and see what she is up to! She now uses an ipad to communicate. If you have a child that is non-vocal currently or does not use speech to communicate, speech generating devices are opening doors for these kiddos! It’s so exciting to see kids learn how to communicate!


I recently read a book, “Schuyler’s Monster” about a father’s experiences with his daughter, Schuyler, and her disability. Robert Rummel-Hudson refers to his daughter’s disability as a “monster” throughout the book that left her unable to communicate verbally. His honesty regarding what he went through before, during, and after diagnosis offers real understanding for professionals and may allow parents to feel understood or not alone. Although some parents and professionals may not like his opinion about disabilities or religion, I found the book to be inspiring and full of hope. Schuyler’s parents never give up on helping her have her own voice through a speech generating device. “Schuyler’s Monster” is a book for all individuals who work with kids who have disabilities.

And if the book leaves you wondering what is going on now for Schuyler, you can read Robert’s blog to find out more!

New York Times Article “Reaching My Autistic Son Through Disney”

This article about a family using Disney animated movies to reach their son has been shared on facebook a few times and I had not had the chance to read it until yesterday…and boy, was I blown away with this story!

As many of us are well aware, lots of children on the spectrum LOVE Disney movies…and when I say love, I mean LOVE! They want to watch movies over and over, quote the whole movie for memory, and rewind and play special parts again and again. A parent and I were having a discussion recently about movie scripting, as she was concerned about her daughter constantly using scripts to communicate and also just repeating an entire script to herself out loud and quietly to herself. It is not uncommon for kids, young adults, and adults to use phrases and sentences from movies to communicate what they are thinking or feeling. I think movies in general can be a wonderful tool to use to continue getting children focused and engaged in learning and allow them to communicate things that they may not have otherwise found the words to communicate. I think as we learn more about the brain of someone with autism, we will see why this plays such a critical role. As long as we continue finding ways to bridge the gap between the animated Disney world and our world, I think we can teach a variety of skills this way. Recently, when I watched Frozen, I found myself “really” watching it…paying attention to Olaf the snowman and the phrases he used, some were silly and some really got to the bottom of the movie. Now, I plan to use the movie Frozen with a client to discuss social interactions. I see a new set of social classes in Jackson Autism Center’s future…